Spina Bifida Treatment

Child in spina bifida treatment programThe Comprehensive Spina Bifida Program at the Benjamin Russell Hospital for Children and the University of Alabama at Birmingham, embraces the lifelong spina bifida treatment model in addressing the management of all facets of care for patients with Spina Bifida. Three different spina bifida treatment clinics are staffed by members of the Division of Pediatric Neurosurgery to support the vision of a life time care plan: the pre-natal clinic, the pediatric multi-disciplinary spina bifida clinic, and the adult multi-disciplinary clinic.

Pre-natal Spina Bifida Clinic
The pre-natal clinic is conducted with colleagues in the Department of Maternal-Fetal Medicine (MFM) on a monthly basis. Pregnant women carrying a fetus with a presumptive diagnosis of a Neural Tube Defect have the opportunity to meet with MFM providers who advise with regard to the pregnancy and delivery and with members of the division of Pediatric Neurosurgery and the Spina Bifida Clinic Coordinator. The principles of care and typical course for infants with Spina Bifida are reviewed and the family has an opportunity to have their questions answered.

Pediatric Multi-Disciplinary Spina Bifida Clinic
Our multi-disciplinary Pediatric Spina Bifida clinic actively follows over 500 patients/families with SB making it the largest in the Southeast and one of the largest spina bifida treatment clinics in the nation. Dr. Blount and Dr. Oakes have both served the National Spina Bifida Association as member at large and chair of the Professional Advisory Committee (PAC) of the SBA.

Pediatric Spina Bifida Clinic
Meets every 2nd and 4th Wednesday each month in Clinic 3 in the McWane Building of the Russell Campus. Physicians from 4 different divisions (Urology, Orthopedics, Neurosurgery, Physical Medicine and Rehabilitation) attend along with extensive nursing staff, social workers, physical therapists, Orthotists and Spina Bifida clinic coordinator and researchers. Please contact Betsy Hopson at 205-638-5281, for any pediatric appointment request.

Adult Spina Bifida Clinic
Meets monthly at Spain Rehabilitation at UAB under the direction of Drs. Amy Mclain and Danielle Powell in the Department of Physical Medicine and Rehabilitation at UAB. Dr. Blount and Betsy Hopson attend from Children’s Neurosurgery as well as members of the UAB Department of Urology. Over 125 patients have been seen and are being followed in this clinic and we continue to make inroads into the challenging process of transition to adult care. Please contact the Spain Rehabilitation at 205-934-4179 for any adult appointment request.

Spina Bifida Program Coordinators
Betsy Hopson

Sub-specialty Interests
Jeffrey Blount, MD

More Information

Links
National Spina Bifida Association
UAB Department of Physical Medicine and Rehabilitation

Publications

Chern JJ, Kirkman JL, Shannon CN, Tubbs RS, Stone JD, Royal SA, Oakes WJ,Rozzelle CJ, Wellons JC. Use of lumbar ultrasonography to detect occult spinal dysraphism. J Neurosurg Pediatr. 2012 Mar;9(3):274-9.

Blount JP, Gordon AS, Foreman PM, Grant JH. Multidisciplinary staged surgical management of bifrontal meningoencephalocele with long-term follow-up. J Neurosurg Pediatr. 2013 Apr;11(4):478-84. 2013 Jan 25. PubMed PMID: 23350678.

Chern JJ, Muhleman M, Tubbs RS, Miller JH, Johnston JM, Wellons JC 3rd,Blount JP, Oakes WJ, Rozzelle CJ. Clinical evaluation and surveillance imaging in children with spina bifida aperta and shunt-treated hydrocephalus. J Neurosurg Pediatr. 2012 Jun;9(6):621-6.

Loukas M, Shayota BJ, Oelhafen K, Miller JH, Chern JJ, Tubbs RS, Oakes WJ. Associated disorders of Chiari Type I malformations: a review. Neurosurg Focus.2011 Sep;31(3):E3.

Bui CJ, Tubbs RS, Oakes WJ. Tethered cord syndrome in children: a review. Neurosurg Focus. 2007;23(2):E2. Review.

Tubbs RS, Bui CJ, Loukas M, Shoja MM, Oakes WJ. The horizontal sacrum as an indicator of the tethered spinal cord in spina bifida aperta and occulta. Neurosurg Focus. 2007;23(2):E11. Review.

Blount JP, Tubbs RS, Wellons JC 3rd, Acakpo-Satchivi L, Bauer D, Oakes WJ. Spinal cord transection for definitive untethering of repetitive tethered cord. Neurosurg Focus. 2007;23(2):E12.